{"id":611,"date":"2023-12-31T15:05:24","date_gmt":"2023-12-31T15:05:24","guid":{"rendered":"https:\/\/autismstories.eu\/?p=611"},"modified":"2024-04-20T08:19:28","modified_gmt":"2024-04-20T08:19:28","slug":"one-year-photo-project","status":"publish","type":"post","link":"https:\/\/autismstories.eu\/fr\/one-year-photo-project\/","title":{"rendered":"Un an apr\u00e8s le d\u00e9but de mon projet photo\u00a0: ce que j'ai appris"},"content":{"rendered":"

C'est le dernier jour de l'ann\u00e9e. Je veux prendre un moment pour repenser et comprendre ce qui s'est pass\u00e9 avec mon projet photo. <\/p>\n\n\n\n

J'ai commenc\u00e9 mon projet Autism Stories en janvier 2023. Ma premi\u00e8re visite \u00e0 mon premier participant a eu lieu le 21. J'\u00e9cris cet article presque un an plus tard.<\/p>\n\n\n\n

Mon projet photo explore la vie des personnes autistes et de leur entourage : famille, amis, th\u00e9rapeutes. Il examine les relations entre les personnes autistes, ceux qui les soutiennent et la soci\u00e9t\u00e9 dans son ensemble.<\/p>\n\n\n\n

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Jusqu'\u00e0 pr\u00e9sent, j'ai travaill\u00e9 avec 12 familles qui ont un enfant ou un adulte autiste. J'ai d\u00fb faire entre 35 et 40 visites, suivant mes participants non seulement \u00e0 la maison mais aussi \u00e0 l'ext\u00e9rieur, lorsqu'ils visitent des lieux et font des choses qui comptent pour eux.<\/p>\n\n\n\n

Le genre de photographie que je faisais auparavant \u00e9tait en grande partie d\u00e9pourvu de personnes. J'avais l'habitude de photographier des espaces sauvages et des environnements urbains d\u00e9serts. Ce projet a \u00e9t\u00e9 ma premi\u00e8re exp\u00e9rience consistant \u00e0 mettre les gens au premier plan. Se rapprocher d'eux. Ecouter leurs histoires. \u00catre t\u00e9moin.<\/p>\n\n\n\n

Tout projet de ce type est \u00e9galement une exp\u00e9rience d\u2019apprentissage \u2013 et c\u2019est probablement une exp\u00e9rience d\u2019apprentissage avant toute autre chose. Ce sont quelques-unes des choses que j\u2019ai apprises en cours de route.<\/p>\n\n\n\n

Acc\u00e8s<\/h3>\n\n\n\n

Prendre des portraits d\u2019enfants et d\u2019adolescents ayant un handicap neurod\u00e9veloppemental ne se fait pas simplement en interrogeant les gens dans la rue ou en s\u2019affichant sur des forums en ligne. Ce ne sont pas des photos que vous pouvez prendre en passant. Les sujets ou leurs tuteurs l\u00e9gaux doivent le savoir et consentir. Il doit y avoir plus d'une r\u00e9union avec chaque sujet. Il faut de la confiance.<\/p>\n\n\n\n

Mais avant m\u00eame de consentir ou de faire confiance, comment entrer en contact avec les bonnes personnes ?<\/p>\n\n\n\n

Dans mon cas, cela s'est fait en grande partie gr\u00e2ce \u00e0 GAMP<\/a>, une association belge de d\u00e9fense des droits des personnes handicap\u00e9es. Je leur ai propos\u00e9 l'id\u00e9e du projet et ils ont eu la gentillesse de le promouvoir et de faciliter les contacts avec les familles qui avaient des enfants ou des adolescents autistes.<\/p>\n\n\n\n

Avoir acc\u00e8s et maintenir l'acc\u00e8s \u00e0 de vraies personnes confront\u00e9es \u00e0 de vrais probl\u00e8mes, qui ne me doivent rien et qui ont beaucoup \u00e0 faire, n'est pas une t\u00e2che facile. Naturellement, ils voulaient d\u2019abord savoir en quoi consistait le projet et comment ils seraient impliqu\u00e9s. Ils avaient besoin d\u2019\u00e9tablir une certaine confiance en moi et en le projet.<\/p>\n\n\n\n

Le fait que je sois \u00e9galement parent d\u2019un enfant autiste aurait pu m\u2019aider. Il existe un sentiment de solidarit\u00e9 entre les parents qui m\u00e8nent des batailles similaires. Mais l'\u00e9l\u00e9ment essentiel pour \u00e9tablir la confiance a \u00e9t\u00e9 de discuter directement avec le participant et de lui expliquer ce que signifiait ce projet, pourquoi je voulais le faire, mais aussi pourquoi ils pouvait \u00eatre int\u00e9ress\u00e9s \u00e0 y participer.<\/p>\n\n\n\n

Une fois l\u2019acc\u00e8s accord\u00e9, il doit \u00eatre maintenu. Ce ne sont pas des gens qui viennent se faire photographier. Ce sont des personnes qui d\u00e9cident de partager leur intimit\u00e9 et leur vuln\u00e9rabilit\u00e9.<\/p>\n\n\n\n

On peut arriver pour une visite photo et d\u00e9couvrir que la personne autiste ne veut pas qu'on la prenne en photo. M\u00eame s\u2019ils ne s\u2019expriment pas verbalement, ils peuvent indiquer clairement qu\u2019ils se sentent mal \u00e0 l\u2019aise et qu\u2019ils veulent simplement qu\u2019on les laisse seuls. C\u2019est frustrant d\u2019avoir fait tout ce chemin et de ne pas pouvoir photographier, mais aucun projet ne vaut la peine de causer un stress suppl\u00e9mentaire \u00e0 quelqu\u2019un qui est d\u00e9j\u00e0 dans une position vuln\u00e9rable.<\/p>\n\n\n\n

La visite peut parfois \u00eatre mise \u00e0 profit pour approfondir la discussion avec la famille. Il ne peut jamais y avoir trop de contexte et de d\u00e9tails. Les photos ne se r\u00e9v\u00e9leront et ne raconteront une v\u00e9ritable histoire que si elles sont replac\u00e9es dans le contexte de vie du participant.<\/p>\n\n\n\n

\u00catre l\u00e0<\/h3>\n\n\n\n

Dans tout projet \u00e0 long terme, les choses vont forc\u00e9ment se heurter \u00e0 un mur de temps en temps. On envoie des emails auxquels on ne r\u00e9pond jamais. On propose des visites photos qui sont annul\u00e9es et reprogramm\u00e9es encore et encore. On s'interroge sur la mani\u00e8re dont le projet doit \u00eatre d\u00e9velopp\u00e9. <\/p>\n\n\n\n

Parfois, on a l\u2019impression que tout le mat\u00e9riel qu'on a rassembl\u00e9 jusqu\u2019\u00e0 pr\u00e9sent est de la merde et qu'on n'a rien sur quoi b\u00e2tir. Parfois, on ne se sent tout simplement pas \u00e0 la hauteur. Parfois, on est trop fatigu\u00e9 et on a simplement besoin de temps pour soi.<\/p>\n\n\n\n

Il est facile de c\u00e9der \u00e0 cette voix accablante et d\u00e9courag\u00e9e. Mais \u00eatre l\u00e0, simplement se pr\u00e9senter sans attentes rigides, est aussi plus facile qu\u2019il n\u2019y para\u00eet. Se pr\u00e9senter \u00e0 la prochaine visite, se pr\u00e9senter pour retoucher les photos, se pr\u00e9senter pour travailler les textes et \u00e9couter les enregistrements avec les participants. Une fois disparues la pression suppl\u00e9mentaire que nous nous imposons et les attentes de performer \u00e0 un niveau suffisamment \u00e9lev\u00e9, il ne reste plus qu'une mani\u00e8re plus sereine d'encha\u00eener les mouvements et de faire avancer les choses. <\/p>\n\n\n\n

Et parfois, c\u2019est tout ce qui est n\u00e9cessaire pour faire avancer les choses, quel que soit leur r\u00e9sultat.<\/p>\n\n\n\n

Engagement personnel<\/h3>\n\n\n\n

Les projets photo personnels ont tendance \u00e0 devenir encore plus personnels \u00e0 mesure qu\u2019ils se d\u00e9veloppent. Les gens s'ouvrent. On est t\u00e9moin de souffrance et de vuln\u00e9rabilit\u00e9. La vie se d\u00e9roule. En rencontrant encore et encore les m\u00eames sujets, on se surprend \u00e0 y penser. Penser \u00e0 ce que c'est d'\u00eatre eux. On n'est plus un t\u00e9moin d\u00e9tach\u00e9.<\/p>\n\n\n\n

Mais trop se rapprocher des sujets peut finir par mettre \u00e0 mal le projet. Assumer la vuln\u00e9rabilit\u00e9 des autres peut devenir trop difficile. J'avais besoin de garder un certain degr\u00e9 de d\u00e9tachement pour continuer. J'avais besoin de t\u00e9moigner avec empathie mais sans fusionner avec la situation observ\u00e9e. J\u2019avais besoin de rester conscient de mon r\u00f4le pour refl\u00e9ter honn\u00eatement les situations de la vie, mais sans m\u2019identifier au point de vue de mon sujet.<\/p>\n\n\n\n

J'ai \u00e9galement eu du mal avec un autre probl\u00e8me. Avec le temps, j'ai appris beaucoup de choses sur la vie de mes participants. Je me suis souvent demand\u00e9 si j'arriverais \u00e0 leur rendre justice en racontant ces histoires. Si j'\u00e9tais la bonne personne pour raconter ces histoires. <\/p>\n\n\n\n

Je me suis aussi demand\u00e9 si mon travail ne serait pas per\u00e7u comme une fa\u00e7on de tenter de parler en leur nom \u2013 ce que je voulais \u00e9viter \u00e0 tout prix.<\/p>\n\n\n\n

M\u00eame si ces doutes sont toujours l\u00e0, en arri\u00e8re-plan, ce qui m'a aid\u00e9 \u00e0 avancer, c'est de me rappeler pourquoi j'ai commenc\u00e9 cela et quelles \u00e9taient mes intentions. Je ne suis peut-\u00eatre pas la personne la plus apte \u00e0 raconter ces histoires dans l\u2019absolu. Mais vaudrait-il mieux que ma tentative de leur dire, aussi modeste soit-elle, n\u2019existe pas du tout ? N\u2019oublions pas que nous ne traitons pas d\u2019un sujet populaire et tr\u00e8s m\u00e9diatis\u00e9. <\/p>\n\n\n\n

Je suis enclin au doute de moi-m\u00eame et je me juge g\u00e9n\u00e9ralement durement. Mais il peut \u00eatre lib\u00e9rateur de r\u00e9aliser que certaines histoires n\u2019ont pas beaucoup de conteurs pr\u00eats \u00e0 intervenir. Vous pouvez relever le d\u00e9fi et intervenir, en acceptant les limites et les imperfections de ce que vous pouvez faire. Ou bien l\u2019histoire peut tout simplement \u00eatre jamais racont\u00e9.<\/p>\n\n\n\n

Et il y a tellement d\u2019histoires qui valent la peine d\u2019\u00eatre racont\u00e9es.<\/p>","protected":false},"excerpt":{"rendered":"

It’s the last day of the year. I want to take a moment to make sense of what happened with my photo project. I started my Autism Stories project in January 2023. My first visit to my first participant was on the 21st. I am writing this post almost one year later. My photo project […]<\/p>\n","protected":false},"author":1,"featured_media":565,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[18],"tags":[8,9,10,11,12],"class_list":["post-611","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-photography","tag-autism","tag-autism-stories","tag-photo-project","tag-photography","tag-storytelling"],"yoast_head":"\nOne Year Into My Photo Project: What I've Learnt - Autism Stories<\/title>\n<meta name=\"description\" content=\"This post described some of the things I learned one year into my photo project Autism Stories. 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